Start of radiation therapy

I’m sitting on the kitchen floor and crying. That's all I can do right now. Today was the planning of Aikku’s radiation therapy (18 Greys). A mask was made (to hold her head still while she gets radiation in her scull) and a head CT was taken to find the right areas to beam. Thank... Continue Reading →

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Kuume tuli ja sotki kaiken

Otsikko kertoo kaiken. Keskiviikkona olimme normaalilla hoitojaksolla kympinosastolla saamassa Etoposidia ja Syklofosfamidia. Seuraavana päivänä alkoivat Ara-C:t. Hepreaa monille, mutta normisettiä leukemiaperheille. Aikku oli juuri saanut veriarvonsa sellaiseen kuntoon että hoitoja voitiin jatkaa. Hän on ollut ilman sytostaatteja viikkojen ajan, koska veriarvot eivät ole olleet kovin hyvät. Huokaisin helpotuksesta, sillä pitkät tauot solumyrkyistä pelottavat. Pelottaa pirusti... Continue Reading →

A long day’s night

Finally you fell asleep. We came to the ward only to get a couple of chemos but istead of taking it easy for one night, you developed a massive headache. I remember this happening before, but not in a while. I hope you get to wake up to a betterd day. Love you! Mom

It hurts

Once more sitting in the emergency. Aikku is having stomachpain again. It started right before bedtime and paracetamol and tramal did’t do the trick. So we had to come in to emergency. On the way Aikku asked (literally) ”are we going to the place where they don’t do anything?” A lot of trust the hospital... Continue Reading →

A shot of antibodies

today Aikku got her second round of immunoglobulin. According to Wikipedia Immunoglobulin therapy, also known as normal human immunoglobulin (NHIG), is the use of a mixture of antibodies (immunoglobulins) to treat a number of health conditions. The effects last a few weeks. Human immunoglobulin is made from human blood plasma. It contains antibodies against a large number of... Continue Reading →

Calm waters

Aikku is now in the middle of SCB4 phase of the IntReALL2010-protocols B-arm. It has been a long infection-free phase and we are thankful of that. Her blood values haven't been the best lately tough and I counted that we are over 10-weeks behind the protocol. That worries me a little, but I'm thankful that... Continue Reading →

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